We are Ed, Heidi, Beckett and Brody. In early 2011, Beckett was suddenly diagnosed with Guillain Barre, a severe medical condition in which the body’s immune system attacks itself, leading to paralysis. In most children – with rapid diagnosis and treatment – the disease stops and gradual recovery occurs over weeks and months. Amid the depths of his disease, Beckett wouldn’t eat; but when he did emerge from the dark, the first thing he requested was bacon and candy (Peeps to be exact). He ate three pieces of each. And thus began the story of his recovery – and ours. This is our tale.

7 thoughts on “About

  1. Ed,
    I know we didn’t really know each other in high school, but I wanted to let you know that my wife Danielle and I have been tuned in to everything going on with your son and are praying for his quick recovery. As a father of a 2 year old it breaks my heart to see my own son sick from something as usual as a common cold, so I can’t even imagine what you and your wife have gone through emotionally. The strength you guys have (and Beckett too) seems unbelievable. Wishing you guys all the best and thanks for the updates.

  2. I just watched the “butter” video, and I was so taken by how he pronounced “butter”; just like Grandma Heister would. I see so much of her in his little self. What a vivacious, beautiful child…and how could Beck be anything less with the parents that pilot his life. You two show him such perfect love and strength. My heart has been captured by this child and I am so proud to be a part of his little family tree. You and Heidi have such a beautiful essence about you and your gift of expressing yourselves in writing has been nothing short of brilliant. I love you guys with all my heart and I am so excited to see our little angel, fire-ball, over-comer, conquer his rehab victoriously!! Wendy, Nick and Ashlyn

  3. I heard about this site and love to hear that beck is getting better im so happy dont tell him or brody but i put together a package for them and put some hawaiian presents thank you please keep me updated i love to hear about him and brody
    P.S. My mom and dad say “hi” and they are thinking about you too. Thanks.

  4. Ed and Heidi,

    We just want you to know that we are very happy to know that Beckett is doing very well. We will be praying for all of you and hopefully to see Beckett at school soon.
    Please keep us updated with his recovery and let him know that Onyx said hello.

    God Bless!

    David, Jenny, Jill and Onyx

  5. Hi Heidi and Ed,
    I think about you all often! Wish I could hop on a plane and come see you. What a wonderful gift you are to each other. Your description of your experience moved me so much. I’m proud of you for recognizing your emotional process and facing it.

    Your description of the darkness of fear rang too true for me. I lived in that space for 1 and a half years with my own illness of anxiety. I couldn’t even find my God who always comforted me before. Fear is so debilitating. I learned many useful tools for changing thoughts and keeping in balance.

    One thing I know for sure is we have to allow ourselves to experience our emotions and not push them away. Then choose what we know is good for us and follow through…like you said. With love of Spirit, family and friends and openness to healing, we can survive and even blossom more fully in our lives.

    Thank you so much for sharing…it reminds me of what I learned too…to appreciate all life has to give us every moment of every day!
    Love and Hugs to you all!


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