Category: Video

by Ed February 19, 2011 1

Up and at ’em

They don’t waste time here; even on the weekends. It’s 10:50 a.m. and Beckett has already had 3 therapy sessions.Continue Reading

by Ed February 17, 2011 1

Daily Updates Video

Good Night, Thursday

I’m going to keep it brief tonight. I need to get away from this computer and do something lazy –Continue Reading

by Ed February 15, 2011 3

Daily Updates Picture Video

The Road Less Traveled

Tonight, Beckett gave us a grand finale in his room at Barrow Neurological Institute. He tied a shoe. Granted, itContinue Reading

by Ed February 13, 2011 3

Daily Updates Video

Then and Now …

It’s only been eight days, but Montana – and Heidi and I’s 10th anniversary trip – seems very distant. TimeContinue Reading

by Ed February 13, 2011 5

Daily Updates Video

Reality 2.0

There’s moments when the picture of the new version of our lives takes shape. We have a new job, Heidi,Continue Reading

I’ve written professionally about politics, utilities, crime and dabbled in creative writing most of my adult life. In 2011, and again in 2017, my son was diagnosed with Guillain-Barre, a rare disorder in which the body’s immune system attacks the nervous system. He’s recovered twice. Both times, this blog became both a way to communicate universally with those who cared about him; but also as a place for me to cope with the fear and uncertainty of serious illness.

I’m still trying to understand what it all means – the love, the pain, the sadness, the demons, the joy – we encounter daily. Somethings I write those thoughts out, in all their random forms. That’s what you get here.